Links / Resources Updated 2012
|
Publications |
|
|
|
|
|
|
- Anger Tips
A brochure of tips for when anger gets too much.
|
|
|
|
|
|
|
|
Suggested Websites and Resources |
| Newsletters
|
- The Caregiver is a newsletter of the Duke Family Support Program. The
Caregiver links families and professionals caring for persons with memory disorders and is the oldest continuously publishing family caregiver
newsletter in the US. NC residents, call 800-646-2028 to request a free subscription. Out-of-state readers, send $10 (check payable to Duke Family
Support Program) to Duke Family Support Program, DUMC 3600, Durham, NC 27710. Or read online at here.
|
- Perspectives is a quarterly newsletter written for people with dementia that addresses
the concerns, reflections, and coping skills of individuals with Alzheimer's or a related memory disorder. Send requests for free email subscriptions
to lsnyder@ucsd.edu. For surface mail, send $20 (check payable to UCSD ADRC) to Lisa Snyder, LCSW, UCSD
Shiley-Marcos Alzheimer’s Research Center, 9500 Gilman Drive – 0948, La Jolla, CA 92093.
|
| Alzheimer’s Association 24/7 Helpline
|
- 800-272-3900 The Alzheimer's Association 24/7 Helpline provides reliable information and support
to people with memory loss, caregivers, health care professionals and the public. Consultations are provided by master's level clinicians; and
translation services featuring over 140 languages and dialects are available.
|
| Helpful Online Sites
|
| Aging
|
- www.ahrq.gov/questions The resources on this website will help you to
prepare for your medical appointments, ask questions, and talk with your doctor and health care team.
|
|
- www.caregiver.va.gov A new VA website designed specifically to support care
partners of veterans that offers programs both in and out of the home.
|
- www.dhhs.state.nc.us/aging From the NC Division of Aging and Adult
Services, an overview of and links to state-run services and programs that serve older adults (click on the links to “Alzheimer’s” and “Family Caregiver
Support”).
|
- www.geri.duke.edu Duke University Center for the Study of Aging and Human
Development, established in 1955, serves as a national resource for information about aging and as a training ground for future generations of
researchers, teachers, practitioners and planners.
|
- www.law.wfu.edu/eclinic The Elder Law Clinic at the Wake Forest
University School of Law in Winston Salem provides free, in-person legal assistance to moderate-income seniors.
|
- http://www.legalaidnc.org Legal Aid of NC Senior Law Project (SLP) serves
clients 60 years of age or older. Special priority is given to those seniors with the greatest economic or social need. The SLP team members are
located in various Legal Aid NC offices.
|
- www.lgbtagingcenter.org The National Resource Center on LGBT Aging
provides training, technical assistance and educational resources to aging providers, LGBT organizations and LGBT older adults
|
- http://nihseniorhealth.gov Health and wellness information for older adults
from the National Institutes of Health that is easily accessible and easy to understand.
|
|
|
|
| Alzheimer's Disease
|
|
|
- www.alz.org The Alzheimer’s Association provides education and support for all those
affected by Alzheimer’s and related dementias. Go to the website to find resources and your local chapter.
|
|
|
- www.alzconnected.org ALZConnected connects people with an online community
for Alzheimer’s support. Post questions, share opinions and join discussion groups.
|
- www.alz.org/carefinder The Alzheimer’s Association CareFinder is an online
guide for people living with Alzheimer's and their caregivers to help with selecting a care provider.
|
- www.alz.org/norcal/in_my_community_14292.asp Click
on the link to the booklet help and hope for persons diagnosed with alzheimer’s disease and related disorders. It provides practical summaries
and brief messages for persons living with dementia.
|
- www.alznc.org Alzheimer’s NC provides education, support and services to patients,
families and health care professionals in the eastern and piedmont areas of NC.
|
- www.alzheimersreadingroom.com Bob DeMarco has one of the best
sources of shared experiential wisdom from families who care for and about persons with Alzheimer’s disease.
|
- www.alzstore.com The Alzheimer's Store showcases unique products and information
for those caring for someone with Alzheimer's disease and related disorders.
|
- http://adrc.mc.duke.edu Duke’s Bryan ADRC is a clinical and basic science center
currently focused on diagnosis and prevention of Alzheimer's disease.
|
- www.caring.com The “Alzheimer’s Solution Center” (under “Health A-Z” > “Alzheimer’s
disease”), provides links to learning more about different aspects of Alzheimer’s, including guides to care separated out by disease stage.
|
- www.nia.nih.gov/alzheimers or 800-438-4380 The ADEAR
Center is a resource for information on Alzheimer’s, on locating Alzheimer’s disease research centers and clinical trials, and for credible, free and
current National Institute on Aging publications on Alzheimer’s, caregiving, and other aging-related challenges
|
- www.timeslips.org TimeSlips is an improvisational storytelling method for
people with dementia and their caregivers to read, write and share stories with family and friends.
|
| Caregiving
|
|
|
- www.aoa.gov Find news, resources, programs, and statistics related to aging. The
links to Alzheimer’s Resources, National Family Caregiver Support Program, and legal assistance (all found under “AoA Programs”), are especially helpful
for dementia families.
|
|
|
- www.caregiver.org Family Caregiver Alliance, a pioneer caregiver organization,
offers information and advice for caregivers, including fact sheets (e.g., “Caregiver’s Guide to Understanding Dementia Behaviors”).
|
|
|
- www.dementiacarecentral.com/videos These video clips for
families and care staff are from the professional training DVD "Accepting the Challenge," produced by the Alzheimer’s North Carolina, Inc. with Teepa Snow
and Melanie Bunn.
|
- www.ec-online.net ElderCare Online provides info, access to resources, and an
active online community forum for people caring for aging relatives.
|
- www.eldercare.gov Eldercare Locator, a service of the U.S. Administration on
Aging, is a nationwide service that connects older Americans and their caregivers with information on senior services.
|
- http://www.forltc.org/cms Friends of Residents in Long Term Care is a
resource for NC families looking for long term care or seeking help with an unresolved issue. Friends of Residents also works to influence public
policy on behalf of residents and personal care aides.
|
|
|
|
|
- www.videocaregiving.org A unique resource for in-home caregivers that
tells the stories and shows coping strategies through video clips of persons with Alzheimer’s and their families.
|
| Insurance
|
- www.benefitscheckup.org BenefitsCheckUp is free service of the National
Council on Aging. BenefitsCheckUp asks a series of questions to help identify eligibility for programs that help with everyday expenses including
medications, health care, food, utilities, and legal expenses.
|
- www.medicare.gov/quality-care-finder Designed by the Centers
for Medicare & Medicaid Services, the site offers a broad range of health, Medicare and resource information as well as a tool to make
“apples-to-apples” comparisons of long-term-care facilities, physicians and services.
|
- www.medicarerights.org The Medicare Rights Center works to ensure access
to affordable health care for older adults and people with disabilities and provides consumers with information on navigating Medicare benefits and
Medicare appeals.
|
- http://www.ncdoi.com/SHIIP/Default.aspx The NC website for the
Senior Health Insurance Information Program (SHIIP). SHIIP counsels Medicare beneficiaries and caregivers about Medicare, Medicare supplements, Medicare
Advantage, Medicare Part D, and long-term care insurance. Counselors offer free info on a toll-free line. There is a SHIIP program in every state.
|
| Non-Alzheimer's Dimentias and MCI |
- www.theaftd.org The Association for Frontotemporal Degeneration explains FTD
diagnoses, navigating health care, caregiving challenges, planning for the future, and finding support.
|
- www.gerontology.vt.edu/docs/Gerontology_MCI_final.pdf
Mild Cognitive Impairment (MCI), What Do We Do Now? Is a free pamphlet from Virginia Tech based on interviews with 99 people with MCI and their
families. It includes practical information and useful coping strategies.
|
- www.lewybodydementia.org This Lewy Body Dementia Association website
provides info, support and connection to an online community for LBD families and professionals.
|
| Palliative Care, Hospice Care and Planning for the Future |
|
|
- www.caringinfo.org or 800-662-8859. This National Hospice
and Palliative Care Org. site offers info on living with an illness, caregiving, grieving, finding a hospice, and free advance directives for every state.
|
- www.getpalliativecare.org Site explains palliative care (vs. hospice)
and offers an interactive questionnaire to assist people in determining whether palliative care is appropriate.
|